Elizabeth Zopff, CO

Technology Can Help Those Paralyzed By West Nile Virus
Device Called Ness L300

By Jane Slater, 7NEWS Reporter
POSTED: 4:27 pm MST March 1, 2007
UPDATED: 7:02 pm MST March 1, 2007

FT.COLLINS, Colo. -- Elizabeth Zopff, 34, said she's had it with her brace and the cane that helps her walk upright.
"It digs into your skin. It's painful. It's hot,"said Zopff.
Zopff hasn't always had numbness in her leg. She contracted West Nile virus two years ago on her family farm. It left her right leg numb and devoid of motion.
"When the fever broke, just nothing, nothing was the same," said Zopff.

It's a reality Zopff has struggled with and fought to overcome. But a recent technological advancement has helped her move along.
"I walked with my cane the other day for the first time in years, two years," she said.
The wireless device, dubbed the Ness L300, is giving her back the mobility that the disease took away.
"The electrical stimulation allows the muscles to do the work that they were designed to do. The sensor under the foot communicates wirelessly with the brace," said physical therapist Amanda Barnhart.

The device forces her leg to do the work, instead of relying on the leg brace.
"It literally is completely life-changing," said Zopff.
Zopff said she already has big plans for the device but realizes it will take baby steps to get there.
"I'd like to chase my kid around the playground a little bit. That would be amazing. I'd like to walk in the grocery store and not be totally exhausted. It's difficult you realize how much you take for granted,"said Zopff.

Ken Speake: In his own words- MN (2)

Ken Speake: In his own words
Watch the story about Daisy, featured in February 12th's 5 p.m. newscast.
Dear Folks, It's time. I'm retiring.The work continues to be the absolute finest career I can imagine. It's physical. It's generally outdoors. It's fascinating. I get to meet new people, go new places, and learn new things. I get to work with amazingly creative, talented and intelligent people! I can't think of any career that gives a person more chances for greater variety of knowledge! And absolutely nothing provides the ego gratification of being a TV news reporter. I just so enjoy the work! And I think I'm fine at gathering news in the field.getting out...working with the photographer to get the details and images and sounds of the story to which we're assigned. (All week we'll feature Ken's favorite stories in the 5 p.m. newscast. Click here to see those stories and read more about Ken's amazing career.)But, I just get so tired! I've struggled with fatigue since West Nile Virus knocked me off my feet for two months in the Fall of 2003. I'm just so tired. There are times I want to cry. It's the mental work at the word processor that is energy expensive for me now.In January of 2006, I began working four days a week. Wednesdays, I sleep. It helps. But the fatigue piles up...kinda snowballs, if you will.I'm confused and angered that I don't have the vigor I want to have. I remember being vigorous. It was fun. So, I'm going to retire. When I told my boss Tom Lindner, News Director and VP, he suggested that I'm not retiring, so much as changing careers. I am hoping to put my voice to work and do narration as my second career. I've volunteered to read to a couple of school classes. Volunteer opportunities abound! Over the years, folks have told me my stuff was different, interesting, refreshing, and they like hearing how and why people do what they do to get through life. As my work here ends, I'm beginning to accept the fact that they weren't blowing me a lot of smoke. My life at KARE 11 has been, well, a darn good one. And, while it scares me to think of not being "Ken Speake, KARE 11 News," my new life is filled with possibilities, thanks to the support of my family, my colleagues and oh so many friends. My thanks to all of you for sharing life's journey with me.Best Regards,Ken SpeakeKARE 11 NewsKen Speake, KARE 11 News.

Ken Speake-MN

KARE reporter Speake, suffering from West Nile, retiring
By The Associated Press
.MINNEAPOLIS — Longtime KARE-TV reporter Ken Speake has announced his retirement because of the long-term affects of West Nile virus.Speake, 61, contracted the virus in 2003 and a neurologist said it has left him with brain damage in his left temporal lobe, which controls language function. That has made condensing, synthesizing and creating a story nearly impossible.Speake is known for his delivery of long-form pieces in a deep, folksy, smooth voice. But he hasn’t done a long-form story for two years because the three- to six-minute pieces became too much to handle.After taking some short-term disability leave, Speake cut back to a four-day workweek and focused on shorter news stories. But the weariness and fatigue became too much.“I don’t like the idea of retiring at all,” Speake said. “I love the work, but I’m tired of being tired. I have to come home and take a nap as soon as work’s over. If I don’t, then I’m pretty much wasted for the night.Speake’s thoughtful storytelling backed up with sharp reporting earned numerous awards over the years.“Emotions — that’s what makes the story special,” Speake explained.“I like to show people something that they might not otherwise be able to see,” he said. “I live for what I call ’Thank You, God moments’ — things that don’t have to happen when I’m there, but they do.”“Work has caused me to appreciate life and people,” he said. “It’s given me an insight to the human condition. I’ve learned what’s inconsequential to you is life-changing to someone else.”Speake’s last day at KARE-TV will be Friday.After that, Speake plans to spend more time with his wife, Donna, who is a counselor at Maple Grove High School, and his three sons, ages 17, 29 and 33. Next month, he’s traveling to Australia, and in the summer, he’s planning to go to Ireland and spend some time in the Boundary Waters.

Donnie Manry, TX

A 24-year veteran of the Bryan police department went home from the hospital Friday, after a five and a half month battle with the West Nile Virus.
NBC 6 News first introduced you to Sergeant Donnie Manry in August. Sergeant Manry contracted the virus from a mosquito bite.

He was initially paralyzed from the waist down. With short, determined steps, Manry walked out the doors of Saint Joseph Hospital in Bryan Friday afternoon.
His wife Stephanie said, "I don't know if we know of any other way to be. I mean you just have to make the best of it and that's what we were determined to do so, and that's what's gotten us where we are."

Last August Manry's neck and shoulders became stiff and his temperature shot up to 103 degrees.

At first doctors thought he had the flu, but eleven days after his first symptoms appeared, Manry was diagnosed with West Nile Virus.
Doctors said his future was uncertain, but Manry never gave up.
During the last five and a half months, Manry has undergone extensive physical therapy to relearn things that used to be second nature.

Lead Therapist Julie Cerna said, "He had to relearn how to do all of his activities of daily living, which included how to get in and out of bed, to walk and even being able to bathe and dress again."

Slowly but surely, Manry has gone from being paralyzed from the waist down to now walking with assistance as far as 600 feet.
"Just as recently as last week, there was some new progress and I had my ankle, I was able to move my ankle just a little bit.

I was on the phone with everybody because the progress is still coming,” Manry said.
Manry's children said they're glad he's finally coming home.
Daughter Chelsea said, "I am looking forward to just cuddling up on the couch, watching movies or eating dinner all together. [I’m looking forward to him just] being there like normal.”

The Manry family said while this has been a horrible experience for them, they have learned one big lesson from it; they will never take each other for granted.

WATCH VIDEO-Click Here NBC 6

Kadi Renowden, WI

Kadi Renowden, age 63, Madison, WI -September 2006

Kadi still works full time in an active hospital job, but manifested WNV over Labor Day, 2006 with the usual symptoms (headache, severe fatigue, muscle and neck pain, nausea). Her temperature was low grade, only about 100, but a white blood count at the urgent care was extremely low. Kadi, a nurse, told the MD at urgent care she thought she had WNV, as mosquitoes swarmed around her back porch, undeterred by DEETand she'd had many bites 8 days earlier. She was told she didn't have WNV. She has little recollection of the following 3 days, except for developing a rash, again being told she didn't have WNV when a call was placed to urgent care. Symptoms persisted for nearly 2 weeks, including another acute bout with nausea.

She returned to her internist to check her blood count before returning to work, suggesting she'd had WNV. "You don't have WNV," she was told. Kadi is also a post polio survivor with post polio symptoms. WNV attacks the anterior horn cells of the spinal cord, in the same manner that WNV does, with many correlations. After multiple increased falls, including twice down stairs in 3 weeks, she knew her legs were significantly weaker . She requested another EMG of her legs (a diagnostic test for neuromuscular disorders). Believing she had had WNV, she asked the Dr. to order a test. She had also learned that a neighbor 2 blocks away had been hospitalized for the same time she'd been ill. She was found to be positive for WNV, the 21st confirmed case in WI in 2006. Her own Dr. still refutes that she knew when she had it.

Testing at the time she came down with it might not have tested positive. Therefore, anyone who believes they have the virus need to be tested around a week later, if negative initially.

Kadi's post polio symptoms have been aggravated by the WNV, not unexpectedly, with continued symptoms of sleepiness , fatigue and increased muscle pain. She feels her symptoms may have resolved better had she been tested and encouraged to recuperate more than the 3 days she lost from work; if doctors had listened and paid attention to the symptoms, instead of discounting them. This is possibly the first reported case of a post polio syndrome patient contracting WNV. Since the effect WNV non post polio symptoms is yet unknown, PPS patients need to be especially judicious to avoid exposure, given the specific mechanisms of both diseases, with a worsening of PPS symptoms.

Chris Cottrell WI

Appleton Post-Crescent: Your Fox Cities News Source - Oshkosh man recovers after bout with West Nile

Posted January 23, 2007Oshkosh man recovers after bout with West Nile
By Krista B. Ledbetter of The Northwestern
Wear bug spray.

That's all Chris Cottrell can offer as advice. Cottrell, of Oshkosh, spent the past four months on short-term disability, suffering headaches, fatigue, tremors and numbness. Cottrell contracted West Nile virus last summer, and while he couldn't do much to rid his body of the virus, he's now well aware of what can be done to prevent it.

He believes an infected mosquito bit him while in the woods near Tomahawk in August, he said, but it wasn't until a couple weeks later that debilitating symptoms landed him in the hospital for blood tests. And blood tests confirmed West Nile virus.

Chris Cottrell, photographed with his children Shauna, 11, and Al, 15, was out of work for four months after contracted West Nile in August. Cottrell said he still feels fatigue and numbness on his left side. Oshkosh Northwestern Photo by Shu-Ling Zhou

According for the Centers for Disease Control and Prevention, West Nile virus is a potentially serious illness, spread to a human by a bite from an infected mosquito. In worst-case scenarios, people develop severe symptoms, such as paralysis, vision loss, or even death, but 80 percent of people who are infected never show symptoms at all.

"Your luck has got to be pretty lousy to get this," Cottrell said.

Only one case of West Nile virus was confirmed in Oshkosh last year, said city health director Paul Spiegel.

"Offhand, I don't think we've had any prior human cases here," Spiegel said. "But statewide, a couple years ago, we had a number of widespread cases. The virus spread right across the continental United States."

Spiegel said West Nile virus is likely here to stay. The virus appears to be widespread, and will flare up year after year.

As for Cottrell, he believes he's immune to the virus now, which is a blessing. While out of work for four months and on short-term disability, Cottrell had to seek help from the state to assist him with feeding his two teenage children, and he nearly lost his home. His first day back at work was Jan. 8.

For Christmas, Cottrell's employer, Multi-Conveyor LLC in Winneconne, gathered $1,300 in employee donations, and matched that in order to provide Cottrell and his family a large sum of money to get through the holidays, as well as gifts and food.

"Christmas would've been really slim without it. It was a big-time struggle," he said. "I work with some fantastic guys."

Cottrell found the inability to treat the virus the most frustrating, he said. While he sat at home, battling intense headaches and losing weight – 30 pounds in all – doctors were unable to help, except to treat his symptoms. At one point, he said, he was taking pain relievers, including the occasional Vicodin, every two hours to relieve the aches.

"I can't believe (the government) can't come up with a way to fix this virus," he said.

Although most of Cottrell's symptoms have subsided, he still has the occasional tremor, and a slight numbness on the left side of his face and in his left leg.

"I'm nervous about whether I'm going to fully recover," he said.

Spiegel said a small percentage of the infected population develop severe symptoms, but the health department still stresses that there is potential for severity.

"People should be using good, protective measures when out during mosquito season," Spiegel said. "It's going to be difficult to completely avoid the possibility of contracting it, but the best thing you can do is try to protect yourself from being bitten as best you can."

Krista B. Ledbetter: (920) 426-6656 or kledbetter@thenorthwestern.com

Megan Suzanne Most, Nevada

Nevada Appeal - News: "Douglas West Nile victim still fighting

January 21, 2007--by Susie Vasquez

Progress has been slow, but the fight continues for Megan Suzanne Most, the Douglas County resident who acquired a case of West Nile virus that led to meningitis and ultimately, a crippling paralysis.

Stricken by the disease in July, this single mother of three girls is now talking and breathing on her own. She has movement in one arm and leg, and can move her neck.

In late November, she was on a ventilator most of the time and could not move her head. Most is 34.

'We just keep pushing her,' said Tina Alaniz, one of Most's friends. 'That's all we can do and hope it gets better.'

After the onset of the infection, Most was treated at Carson-Tahoe Hospital, then transferred to South Meadows in Reno for long-term rehabilitative care.

Now that she is off the ventilator she is ready for the next step, a move to Sharp HealthCare in San Diego, Calif., where she will enter a program for patients with spinal chord injuries. The program will equip her with a wheelchair and teach her how to use it,"

"They (Sharp officials) say she's a very good candidate for this program," she said. "Now, it's a matter of when she will go and what she will do afterward."

----- In addition to the physical challenges, Most is facing financial problems with respect to insurance and health care costs. People can send their donations to Greater Nevada Credit Union, account 862957. Checks should be written to Tina Alaniz, for Megan Most. ------

The latest challenge is finding assisted care for her after the Sharp program, which lasts just six weeks, is completed, Alaniz said.

"We're having a big problem with that. Sharp won't take her unless they know what the family is going to do with her after she completes the program, but there are no spots in assisted care in California or Nevada. It's sad," Alaniz said. "We're sitting in limbo."

Right now, Most is scared and upset, and doesn't want to leave northern Nevada because her three daughters are here, Alaniz said.

The girls live with their father in the Reno area.

"It's going to be a long time, but she wants to come home," she said.

Spring is just around the corner and with that, the threat of West Nile as Douglas County's mosquitoes start to swarm.

Alaniz urged people to take precautions, to minimize their chances of acquiring this severe form of the disease.

"People need to be aware of what West Nile can do to someone," she said. "It can hit you hard. Not enough people knew about it last year and everyone I talk to can't believe Megan got this way from West Nile."

A record 123 human cases of West Nile virus were confirmed in Nevada in 2006.

Idaho had more confirmed cases than any other state with a total of 984 and Colorado came in second, with 322. Texas had 327 cases and California, 272, according to figures from the Centers for Disease Control and Prevention in Atlanta.

Susie Vasquez can be reached at svasquez@recordcourier.com or 782-5121, ext. 211.

Thomas Alan Shade, Victim-OH

Man, 31, succumbs to West Nile virus
William Smead says his son, Alan Shade, struggled with the disease since contracting it in 2002.

By Steve Bennish and Ryan Fox

Staff Writers

Thursday, January 18, 2007

WEST CARROLLTON — A man who contracted West Nile Virus in 2002 while at his job at a Middletown warehouse has died of complications from the disease spread by mosquitoes.

Thomas Alan Shade was only 31 when he died in his West Carrollton apartment on Monday after struggling with the disease for years, his father, William Smead of Centerville, said Wednesday night.

Smead said his son, formerly of Franklin, and two co-workers took a break from their jobs at a warehouse. While resting under a tree, they were bitten by mosquitoes and developed flu-like symptoms.

Shade's symptoms worsened and he never recovered, Smead said. He lapsed into a coma for four weeks and remained in the Bellbrook Rehab and Healthcare Center for four years, for a time needing the assistance of a ventilator. When he recently left the center to take up residence in an apartment, he needed the assistance of home care nurses because of partial paralysis, Smead said.

Smead said the Montgomery County Coroner's Office is to perform an autopsy.

Wednesday evening, Bill Wharton of the Montgomery County Combined Health District said he was unaware of any West Nile cases in the county and said the department is not currently monitoring any potential cases. He said the department urges people to protect themselves with repellent during summer months when mosquitoes are active.

The virus is spread by certain species of mosquitoes, which become infected when they bite infected birds, according to the medical Web site WebMD. People then become infected when the mosquitoes bite them.

The majority of infections either cause no symptoms, or they cause symptoms so mild that people don't realize they have been infected, according to WebMD. In rare cases, the virus can lead to inflammation of the brain or the tissues surrounding the brain and spinal cord.

Fewer than 1 percent of victims will become severely ill, according to the Web site.

Shade also is survived by two daughters, three brothers, and two sisters. Visitation is 6 p.m. Friday, with the funeral at 8 at Gebhart-Schmidt-Parramore Funeral Home, on East Linden Avenue in Miamisburg.



Find this article at:
http://www.daytondailynews.com/n/content/oh/story/news/local/2007/01/18/ddn011807westnile.html

Kenneth "Pete" Clay

West Nile left man down, but not out
More than 3 years after contracting virus, Clay continues to gain strength

By MARY PICKETT
Of The Gazette Staff
Life didn't turn out as Kenneth "Pete" Clay expected the past few years, but it's better than it could have been.

After contracting West Nile virus in August 2003, he nearly died.

Even after surviving the mosquito-borne illness, the former cowboy and ranch hand faced a long road.

Clay, now 73, developed the most severe form of the disease, which caused an inflammation of his brain and spinal cord and left his right leg paralyzed and his left leg severely weakened. During the 48 days that he was in St. Vincent Healthcare, he lost 30 pounds because he had difficulty eating most foods.
After Clay came home, the virus had sapped him of so much strength that he was too weak to turn over in bed. His wife, Marilyn, had to turn him over several times during the night to make certain he didn't get bed sores.

Eventually, Clay gained enough strength to start physical therapy in Billings, do regular exercises at home and get around in a wheelchair. He also regained most of the weight that he lost.

Now, he's able to walk with a full leg brace on his weaker right leg and a short brace on his left ankle.

He almost can walk with just one cane, but still needs the second one for balance.

Balance has been the hardest part of his recovery, he said.

His right leg is slowly getting stronger and has a wide range of motion.

"It's coming around," he said.

Most days, he exercises by working on a pedal exerciser and cardio glider.

Asked if he's still making progress, he said, "I believe I am."

"At my age, a lot of people are losing (physical strength)," he said. "If I'm holding my own, I'm doing well."

This summer, he pulled weeds in the large yard around his Hysham home, tended tomato and pepper plants and split kindling wood. He also helps Marilyn wash the dishes.

He has a special pedal on his automatic-drive pickup that allows him to drive short distances around town.

"I get out and do what I can do," he said.

Neighbors have been a big help by bringing heavier pieces of wood to his porch and hauling away some of his garbage.

Getting West Nile is aggravating, he said, but "your life doesn't end."

Early on, he decided to forgo dismal thoughts about his situation.

"I was lying in the hospital recovering and going over things in my mind," he said.

He could feel sorry for himself, he thought, then realized that he had to accept what had happened and go on with his life.

In addition to Marilyn, a major factor in his recovery was the help he received from physical therapist Rose Heeg.

"She's tops in my book," he said.

Attitude is 90 percent of recovery, she told him early on. A positive attitude helped Clay exceed even what Heeg had hoped for.

When Clay asked Heeg how far she had expected him to progress, she told him that they had wanted him to become strong enough to get around in a wheelchair.

"I didn't have long-term plans to spend the rest of my life in a wheelchair," he said.

Contact Mary Pickett at mpickett@billingsgazette.com or 657-1262.

Editor's note: "What Ever Happened to ... ?" is a new feature updating Gazette readers on people, places or things that were in the news in recent months. If you have a topic you would like to see revisited, let us know at 657-1251 or citynews@billingsgazette.com.

Published on Thursday, December 28, 2006.
Last modified on 12/28/2006 at 12:31 am

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